Intro

This is my maiden voyage on blogging. previously I have been posting short and mostly vague posts on my facebook page about whats going on with Lily. This is my attempt to chronicle our "adventures" and to give my bloated FB page a well needed rest from all things of the medical nature. I have been longing to do this since she was born but until today (Merry Christmas to us) we didn't have a computer. I hope this will be a place to keep those who WANT to know about Lily's condition, in the know, and also a healthy way for me to keep track of our triumphs and trials along the way. We shall see. Wish me luck. :)