Today begins the 2nd Annual Feeding Tube Awareness Week!
There is a different topic that I will be blogging about everyday this week.
The topics are found on the FTA website
Today's topic is
"Why awareness is important to my family"
Spreading awareness is important because with awareness
comes sensitivity, and knowledge.
The more awareness spreads the better care our children can receive.
We recently had a doctor (yes a doctor)
that didn't understand feeding tubes at all.
He made some incredibly naive comments
and he was just incredibly rude.
With more awareness doctors would have to learn more about it.
Maybe if Lily's original pediatrician had known more about feeding tubes
and reasons children get them
Lily wouldn't have become so dangerously malnourished.
Also, It would be so nice to have people understand
That just because a child has a feeding tube does not mean
We as parents have failed.
There are many many reasons a child has a feeding tube.
I will go into lily's reasons on a different day.
Mostly with awareness comes understanding
And I would love for Lily to grow up in a world where
feeding tubes are better understood and
where being fed trough a tube in your stomach
doesn't terrify anyone who sees it.
I worry so much about how other children will react to it
as she gets older.
That is basically what it means to me in a nutshell...
Here is the feeding tube awareness video
Lily and Shaun are in it at 2:12
This video shows 222 families with "Tubies"
You have wonderful way with words! The reasons are so simple yet so profound. It always amazes me how we as a sosiety so advanced yet we Judge so quickly and lack to see each other as brothers and sisters of a loving Hevanly father and that we need to lift and help each other. I always love reading your blogs! And i love the music. I will help spred awareness! Love ya
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