MBS and OT

Yesterday morning Lily had her "post g-tube" modified barium swallow.

So we had a 7:20 am check in time but the silly cab was

An Hour LATE

so we didn't get there until 7:55.

Luckily they were nice and still let us do the study.

I wasn't expecting much, I was just hoping her dysphagia hadn't gotten worse.

The Dr had been pretty optimistic. She thought after a few weeks without the NG tube 

Lily's swallow would just "get better", 

I wasn't as optimistic...

 

Well the study showed the same thing as last time.

She still aspirates anything thinner than a Honey thick consistency

But She didn't get worse!

WOO-HOO!!!

After the past week I needed some good news, or at least

some news that wasn't bad.  

So after that we took a cab home and got ready for OT.

 

I really like our new OT (occupational therapist)

She has a lot of experience and Lily is 

beginning to trust her!!!

Lily actually sat on her knee for a few minutes!!!!!

For those who don't see Lily often, 

She doesn't make contact with other people easily

So for her to trust her OT like that was

AMAZING!!!

by the end of OT Lily was exhausted and

spent the rest of the day

being a very fussy lil drama Queen.

 

 

So for the MBS they put her hospital band on her wrist this time 

instead of her ankle and she was 

SOOOO concerned!

She kept touching it and looking

at me like

"is this ok? is it SUPPOSED to be here?"

My silly Lily lady bug!!

  So I told her  " It's ok" and "its pretty and blue"

She felt much better. :)